1 in 10 women of reproductive age in the UK suffer from endometriosis.1 It is a chronic condition which can cause debilitating symptoms. Although effective treatments are available the cause is unknown and there is no definite cure. On average is takes 7.5 years from onset of symptoms to get a diagnosis.2 Delays in diagnosis and management can adversely affect both a person’s physical and mental health.
The All-Party Political Group (APPG) on endometriosis published their findings in October 2020. The inquiry surveyed over 10,000 people with endometriosis, interviewed healthcare practitioners and those with the condition about their experiences. Key findings identified it takes 8 years on average from onset of symptoms to receiving a diagnosis, the same length of time as it did a decade ago. Prior to receiving a diagnosis of endometriosis , due to their symptoms:
• 58% visited the GP over 10 times
• 21% visited doctors in hospital 10 times or more
• 53% went to A&E
The APPG urges ministers and the NHS to improve endometriosis care. They recommend a commitment to drive down diagnosis time, ensure access to appropriate care, raise awareness and invest in research.
For the full report see https://www.endometriosis-uk.org/sites/default/files/files/Endometriosis%20APPG%20Report%20Oct%202020.pdf
- Rogers PA, D’Hooghe TM, Fazleabas A, et al. Priorities for endometriosis research: recommendations from an international consensus workshop.
- Diagnosis Survey. Endometriosis UK. February 2011.